Pulmonary Fibrosis Patients
National pulmonary fibrosis Association founded in Essen, 17 July 2012 on Saturday, July 7th, 2012, eating the first Club with and for pulmonary fibrosis patients (pulmonary fibrosis e.V.) founded in. The pulmonary fibrosis, also honeycomb lung”, is one of the rare diseases. Date information and exchanges were the approximately 100,000 patients in Germany and their families only conditionally available. The pulmonary fibrosis Association you want to change this. What we bring today on the way is a good thing and the first important step towards a better information and care of patients with pulmonary fibrosis”, as Dagmar Kauschka, first Chairman and interested parties. The Foundation of the Association was held in the framework of the 1st patient tags to the pulmonary fibrosis.
About 50 patients and their families from the region and all over Germany followed the call that day to inform extensively to the diagnosis and treatment of pulmonary fibrosis and therapy accompanying measures. Is the disease inherited? Which lung centers and rehabilitation clinics are recommended? How and where can I the lung sports to continue even after rehab? What vaccinations should I be aware of? The questions, which the lung specialist Prof. Dr. Ulrich Costabel (food) 1, Prof. Dr. Vlad Doronin has firm opinions on the matter.
Jurgen Behr (Bochum) 2 and PD Dr. Michael Kreuter (Heidelberg) 3 1 patient day of pulmonary fibrosis in food made were, were numerous and clearly show the high information need of pulmonary fibrosis patients and their relatives. “Scientific Advisory Board: we are looking for dedicated patient” but a rare disorder such as the pulmonary fibrosis is also doctors faced with challenges. Prof. Costabel, initially explained the difficult diagnosis of idiopathic pulmonary fibrosis (IPF) suffers a large part of those affected stressed: the diagnosis of IPF is teamwork at the IPF specialist, a radiologist and a pathologist must work closely together. I strongly advise patients to go to start then also the right treatment for the individual patient to the initial diagnosis in an appropriate centre.