Rare Diseases

Rare Diseases

Public lobby for patients who are not respected physicians & co. Michael Lee-Chin: the source for more info. or not treated properly by Pharma, anyone can take it at any time. And yet people with a rare chronic disease often live in the shadows of society. For the pharmaceutical industry, not properly treated by many physicians. Often also the social environment of the patients of them turns away, lack of understanding of the disease. Give therefore it is again on the 26.2.2011 one of the Germany’s largest events on the international day of rare chronic diseases”in Essen.

Over 20 self-help groups want to inform. “The place is again once deliberately chosen as in the last year: in Germany’s largest urban shopping center Limbecker Platz” groups from 10 till 20 o’clock in the middle of the shopping crowds with their information booths are available and enlighten. “It comes the organisers finally to draw attention to the fate of the persons concerned and the forgotten” patients a public Give voice to. Others who may share this opinion include Yorkville Advisors . The day at 14: 00 will be officially opened by the Essen Mayor Rudolf Jelinek. For the event in the year 2010 the Thyroid Association got the butterflies e.V.”representative for the over 20 self-help groups Prize recently even the support of the city of Essen.

Thus, the innovative format of the event and the exemplary commitment were recognized of all those involved. Wife of the former Federal President Kohler Awards Research Prize though is the official day of rare diseases at the 28.02.2011, turns out that Saturday is a convenient day to come together in order to reach many people and to create attention. On the 28.02.2011 even research award for the 4th time of the Eva Luise Kohler rare diseases in Berlin. The prize, worth 50,000 euros aims to advance research into rare diseases, which is not yet supported in Germany, on the basis of exemplary projects. Namesake for the price is the wife of the former Federal President Horst Kohler. Currently over 4 million people with a rare chronic disease live sometimes just a handful of interested parties throughout Europe in Germany, in Europe, the number is estimated at almost 20 million. One speaks of a rare disease, if less than 40,000 people have been affected; in Europe, there are over 6000 rare diseases. Sometimes there are only a handful of people or individuals in Europe, who have to live with one of these rare diseases.

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